9 months exactly

Wow! 9 months ago this time, we were at Birmingham Children's hospital. MJ was in A & E and fighting for her life. They were struggling to get tubes down her throat. So many people working on her little body and all I could do was watch. So many syringes filled with fluid being pumped into her. Her clothes cut off.

9 months later and MJ is much stronger. She's attending school from 11am to 3pm everyday and in September she's going full time.

She still falls over often, sometimes because she's tired and sometimes it's because she might trip. I've tried to explain to Mic that I need to know when this happens, not to prevent her from having her life, but to find out why she falls and help her live a full life, but others might need to help her more. She's so afraid that I won't let her out. If only she she knew that every time she steps out the door I'm petrified and have to stop myself from pulling her back in.

Her walking is not so great these days either. She has to stop often and complains her knee hurts. It worries me. She's so stubborn that sometimes she won't say that she needs a rest and tries to push her body to do more than it's able. I watch her and listen to her laboured breathing and tell her to rest. I think I'll have to start taking the wheelchair our more often for her.

Other than that, she's been reassessed at school to see what level she's at. There are some improvements, and I'm hopeful that MJ will at least get to a level close to her actual age, so the difference won't be too noticeable amongst her peers.

She is really looking forward to the holiday, as are we all. It has been well deserved and will be much appreciated. I know that I'm looking forward to the break, not just for the break itself, but we will spend time together as a family. Only Ash and Sam won't be with. One day, we will all go on holiday together.