MJ is back at school and her schedule has changed. Needless to say I think it is playing havoc with her at the moment and her fatigue levels waiver from day to day. As this was only the first week of the new schedule, I'll see how she is at the end of week two and if she's still so tired then I'll have to talk with the school to see how things can be changed. She is also trying out a new programme in which she listens to classiscal music to help with memory recall and it's supposed to help relax her. I don't believe it's having that effect. She seems quite stressed by it.
MJ has a new splint. This new one allows for more flexibility. It has a hinge just below her ankle, so she is able to walk better.
Took her swimming today to try and work some of those core muscles. It's a little difficult trying to help MJ to trust me in the water and also trying to teach Cort to swim. Dave doesn't like public pools much, and even though he was with us today, he was extremely uncomfortable. Hopefully before our holiday starts, I will have succeeded in teaching both children to swim.
Things are a little harder for us now as Ash works full time 12-8. We now need to employ a carer not only to assist with MJ, but to help out with picking up Cort etc.
Ugh I tell you, things just seem to get more complicated!
There have also been times when MJ won't eat anything. Why that is I don't know, but it is just disconcerting.
On the up side - and there is always an up side - MJ still manages to laugh everyday. She still loves life and tries to get as much as she can from it.
I'd love to take a page from her book and laugh more often instead of worrying all the time.
If the weather holds out tomorrow, we are off to the beach. Time to tan our extremely white bodies!
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